Myeloproliferative Neoplasms (MPN) - The Bloodline with LLS

Choosing the Path Forward: Shared Decisions in Myelofibrosis Care

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Mary Wells

In this episode, we speak with Mary Wells, who was diagnosed with primary myelofibrosis in 2018, a rare blood cancer that falls under the umbrella of myeloproliferative neoplasms (MPN). Mary walks us through her journey, from the side effects and emotional toll of cancer to finding the right treatment that allowed her to reclaim her life.

Mary shares the ups and downs of watch-and-wait periods, switching medications, and navigating side effects. Along the way, she advocated for her own care and partnered closely with her doctor, making shared decisions that ultimately led her to a treatment that works best for her.

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Mentioned on this episode: 

  • Primary Myelofibrosis
  • Shared Decision Making podcast episode
  • MPN Online chats 
  • LLS Clinical Trial Support Center
  • Advocacy and Public Policy

    • Additional LLS Support Resources: 

    • Free Nutrition Consultations
    • Information Specialists 
    • Financial support
    • Free telephone/web patient programs 
    • Free booklets 
    • Young Adult Resources
    • Support groups 
    • Caregiver support 
    • Caregiver Workbook
    • Survivorship Workbook
    • LLS Community
    • Mental Health Resources

      • Supported by GSK plc.

      The post Choosing the Path Forward: Shared Decisions in Myelofibrosis Care first appeared on The Bloodline with LLS.

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      Myeloproliferative Neoplasms (MPN) - The Bloodline with LLSBy The Leukemia & Lymphoma Society