Pieces2Peace

Chris and Jeanette Kahn talk about their son Austin and his brain stem tumor that ultimately took his life


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Jeanette and Chris Kahn share their journey of their son Austin's battle with a brainstem tumor DIPG. They discuss the challenges they faced in getting a diagnosis and the subsequent treatments, including surgeries, chemotherapy, and radiation. Despite the difficulties, Austin found solace in playing golf and excelled in the sport. The conversation highlights the resilience of the family and their determination to keep open communication between them. Austin's condition deteriorated rapidly, and he eventually became bedridden. The doctors informed Jeanette and Chris that there was nothing more they could do, and they had to make the difficult decision to remove the breathing tube. Austin was able to choose the day. They spent the last few days creating special memories with him and saying goodbye as a family. After Austin's passing, Jeanette and Chris grieved differently, with Jeanette becoming withdrawn and Chris expressing anger. They learned to communicate openly and understand and accept each other's way of grieving. After experiencing the loss of  Austin, Jeanette and Chris Kahn share their journey of grief and how it has impacted their lives. They discuss the emotions and challenges they faced, the importance of having a supportive family and circle of friends, and the need for compassion and understanding. They emphasize the significance of acknowledging and talking about their son, as well as the value of practical acts of kindness from family, friends and acquaintances. They also reflect on the evolution of their beliefs and priorities, and the lessons they have learned through their grief.

Chris is an ambassador for the Alex Lemonade Stand Foundation (ALSF).  ALSF is the largest independent childhood cancer charity in the U.S., focused on funding critical research and supporting childhood cancer families.

Their website is https://www.alexslemonade.org/

Chris has been working with the University of Michigan in his role with ALSF to partner with them as they are focused on research specifically for DIPG brain cancer, which is what Austin had. 

This is a link to ALSF website where Austin’s story is

https://www.alexslemonade.org/hero/austin-kahn

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Pieces2PeaceBy Heather Stephen