Rare Disease Discussions

CME: Managing Cardiomyopathies in Lysosomal Disorders


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This CME/CE activity describes the pathophysiologies and management options for lysosomal disease patients with cardiomyopathies. This continuing education activity is provided through collaboration between the Lysosomal and Rare Disorders Research and Treatment Center (LDRTC), CheckRare CE, and AffinityCE.

This activity provides continuing education credit for physicians, physician assistants, nurses, nurse practitioners, and genetic counselors. A statement of participation is available to other attendees. To receive credit for this program, go to https://checkrare.com/learning/p-ldrtc2022-webinar2-managing-cardiomyopathies-in-lysosomal-disorders/

Speakers
Ozlem Goker-Alpan, MD, Founder and President, LDRTC
John Jefferies, MD, Governor, American College Cardiology, Tennessee Chapter President, American Heart Association, Mid-South Chapter Research Member, St. Jude Children’s Research Hospital Team Cardiologist, Memphis Grizzlies


.Learning ObjectivesAt the end of this activity, participants should be able to:
  • Describe the role of the cardiologist in the team approach to care
  • Describe best practices to monitor cardiac symptoms in lysosomal disorders
  • Describe best practices to treat cardiac symptoms in lysosomal disorders

Support for this educational activity was provided by Takeda, Sanofi, Amicus Therapeutics and Chiesi USA.


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Rare Disease DiscussionsBy Peter Ciszewski, CheckRare

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