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Welcome back to Coffee & Turner Syndrome!

We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. This week, we are throwing it back in a replay episode, to our conversation with Nicole about her experience going through the IVF process.

☕ Grab your coffee and join us

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Welcome back to Coffee & Turner Syndrome!

We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.What exactly is Nonverbal Learning Disability (NVLD), and what does it actually look like in everyday life?

In this deeper conversation, we take a closer look at NVLD — going beyond the definition to talk about the things that often aren't obvious from the outside. From learning and school to social communication, organization, spatial awareness, relationships, we explore the many ways NVLD can affect a person's life.

We share our personal experiences with the different aspects of NVLD.

☕ Grab your coffee and join us for this NVLD deep dive on Coffee & Turner Syndrome.

#CoffeeAndTurnerSyndrome #TurnerSyndrome #NVLD #NonverbalLearningDisability #LearningDisability #LearningDifferences #Neurodiversity #TurnerSyndromeAwareness #InvisibleDisability #DisabilityAwareness #LearningSupport #SpecialEducation

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Welcome back to Coffee & Turner Syndrome!

We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, we’re reacting to a recent Live Action News article about a couple who received an NIPT result suggesting their baby girl might have Turner syndrome. The mother was considering abortion based on the result, but after the father turned to Reddit for advice, commenters encouraged them to seek further testing rather than make a decision based on a screening test alone.

And then came the twist…

We’re talking about our reactions to the story, what stood out to us, the difference between an NIPT screening and a diagnostic test, and what this story made us think about as women living with Turner syndrome.

We’re also talking about the bigger questions this story raises about prenatal testing, how Turner syndrome is portrayed, and what happens when a diagnosis or possible diagnosis is viewed only through the lens of fear.

📖 Read the Live Action News article:

[READ THE ARTICLE HERE]

What are your thoughts on this story? Let us know in the comments!

As always, this episode reflects our personal experiences and perspectives living with Turner syndrome and is not medical advice.

#CoffeeAndTurnerSyndrome #TurnerSyndrome #TurnerSyndromeAwareness #NIPT #PrenatalTesting #MosaicTurnerSyndrome #TurnerSyndromeAwarenessMonth #GeneticTesting #Pregnancy #RareDisease #XChromosome #TurnerSyndromeCommunity

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Welcome back to Coffee & Turner Syndrome.

We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, we’re talking about love, dating, marriage, and the hard conversations that can come with a Turner syndrome diagnosis. We’re joined by the author of Butterfly Kisses, a couples workbook created to help couples navigate meaningful conversations and grow together.

What does it look like to tell someone you’re dating that you have Turner syndrome? When do you have the conversation about infertility? And how can a diagnosis that affects so many parts of your life become something you navigate together rather than something you carry alone?

We talk honestly about the complexities of sharing your diagnosis with a partner, the fears and expectations surrounding infertility, marriage, communication, and what it means to build a relationship where both people feel seen, heard, and supported.

Because Turner syndrome can affect so much of our lives—but it doesn't have to define our capacity to love and be loved. 🦋❤️

☕ Grab your coffee and join us for a conversation about the hard things, the hopeful things, and everything in between.

You can find all of Clare's books and links here: https://linktr.ee/TheNvldConnection

You can watch Brooke's film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

#CoffeeAndTurnerSyndrome #TurnerSyndrome #TurnerSyndromeAwareness #ButterflyKisses #TurnerSyndromeAndRelationships #DatingWithTurnerSyndrome #MarriageAndTurnerSyndrome #Infertility #InfertilityAwareness #Relationships #CouplesCommunication #LoveAndInfertility #RareDisease #RareDiseaseAwareness

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Welcome back to Coffee & Turner Syndrome.

We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, we’re talking about the phrase “I can’t reach that”—both literally and figuratively. Being short with Turner syndrome can come with plenty of everyday challenges, but sometimes the things we’re told we can’t reach have less to do with our height and more to do with other people’s expectations of what we’re capable of.

We talk about being underestimated, the assumptions people can make about Turner syndrome, and what it means to challenge the limitations others place on us.

And we talk about why “I Can’t Reach That” is especially meaningful to Andrea, as it becomes the name of the new podcast she’s starting.

Grab a cup of coffee and join the conversation. ☕🦋

Watch the film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

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Welcome back to Coffee & Turner Syndrome.

We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, we’re talking about the connection between Turner syndrome and diabetes. Andrea shares her personal experience living with diabetes, what that journey has looked like for her, and how it intersects with Turner syndrome.

We also talk about why understanding the health risks associated with Turner syndrome matters—and why hearing real experiences can be just as important as knowing the statistics.

Grab a cup of coffee and join the conversation. ☕🦋

Watch the film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we chat with Savannah and hear her TS story. 

Enjoy!

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Welcome back to Coffee & Turner Syndrome! We're Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, Andrea shares her experience attending the International Turner Syndrome Conference in Australia and what she learned about healthcare, and the global Turner syndrome community.

We also discuss why medical accuracy and clear communication matter so much. A recent social media post from a Turner syndrome organization sparked an important conversation about how confusing messaging can unintentionally create misunderstandings. We share why we believe evidence-based communication is essential for patients, families, healthcare providers, and anyone learning about Turner syndrome.

Our goal isn't to criticize for the sake of criticism—it's to encourage thoughtful, accurate conversations that help our community grow stronger together.

Let us know your thoughts in the comments. How can we continue improving Turner syndrome awareness while keeping medical information clear, accurate, and helpful?

watch Like A Butterfly: www.butterflyentertainment.online/likeabutterfly

Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, we talk about the film Like A Butterfly, why we've shared our stories so publicly, and how much work for Turner Syndrome is still needed.Sharing your story does more than you think. 🦋🎟️Tickets & dates: https://www.eventbrite.com/e/like-a-butterfly-winter-screening-series-tickets-1981460753453?aff=oddtdtcreator

Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, Brooke shares how she's feeling at this point in awareness month - and how she hopes Like A Butterfly helps the Turner Syndrome Community and raises awareness.

From Brooke:

For over ten years, I’ve shared about life with Turner Syndrome — the medical anxiety, the infertility grief, the school struggles, the endless explaining, and also the strength and resilience that comes from walking this road.

In this episode of Coffee & Syndrome, I’m sharing why I created the documentary Like A Butterfly, what it means to me personally, and what I hope it brings to the Turner Syndrome community.

Turner Syndrome is life-changing — and still so unknown. My heart behind this film has always been simple: awareness and encouragement. I want people who have never heard the words “Turner Syndrome” to hear them alongside real stories. And I want the women living with it to feel seen, understood, and less alone.

I’ll also share how you can be part of helping these stories reach further.

Grab your coffee and let’s talk about storytelling, awareness, and why our voices matter. 💙🦋

💙🦋Like A Butterfly - Winter Screening Series https://www.eventbrite.com/.../like-a-butterfly-winter...