In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Andy Fithall, who shares his personal experience of being diagnosed with Chronic Lymphocytic Leukaemia (CLL) at the age of 40. Highlighting the challenges of receiving a blood cancer diagnosis during the COVID-19 pandemic and navigating the “watch and wait” approach, which can be an unfamiliar and sometimes isolating experience.

Andy discusses how his diagnosis occurred unexpectedly when he was being screened for haemochromatosis. Describing the shock of hearing the diagnosis, and the anxiety that followed during the days leading up to his first specialist appointment. He reflects on the impact this news had on him, and the process of telling his diagnosis to his wife and two children in an age-appropriate way. 

They explore the psychosocial aspects of living with blood cancer, particularly in a “watch and wait” situation. Andy talks about managing anxiety, the periodic worries triggered by upcoming blood tests, and the challenge of balancing normal life with the uncertainty that comes from not knowing if or when treatment will be needed. 

They also touched on the feelings of loneliness and isolation that can come with a diagnosis where immediate treatment is not required. Andy notes that although he looks healthy from the outside, the emotional impact of living with blood cancer is real. Emphasising the value of being honest with loved ones about what he is experiencing and encourages others in similar situations to reach out for support.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

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