Jayne Hughes is the founder and driving force behind Amy and Friends, a UK based charity dedicated to supporting children and families affected by Cockayne Syndrome and other DNA repair disorders.

Amy and Friends is inspired by Amy, Jayne’s daughter who courageously lived with the condition. Amy and Friends was formed in 2007 to provide desperately needed support, research and advocacy for families around the world navigating life with these rare, life-limiting conditions.

Subscribe now to start your journey of discovery, and together, let’s build a better future—one purposeful step at a time. 

Visit www.gleecoaching.com to learn more. 

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