Emma Jobsis joins Capital Chat today to update us on Cade's progress and events that are coming up to support their effort to raise money to support research. Donate at cureforcade.com. This is Cade's story:

Cade Jobsis is 3 years old and has been the happiest kid who brings joy to everyone he meets, but he has
always fallen behind his peers in meeting milestones. In the summer of 2023, we participated in a genetic
sequencing study with hopes that it would shed light on Cade’s slow progress. The tests revealed that he was
born with an ultra-rare genetic disease called AP4 Hereditary Spastic Paraplegia(SPG50). We were
devastated to learn that the disease is degenerative and without treatment will progress to a loss of motor
and cognitive function. We will do everything in our power to defy the odds and ensure a different future for
our son. 

In the depths of our despair there is hope. Cade’s disorder can now be treated with a new gene therapy,
however the program responsible for putting together the clinical trials has recently fallen short of the
funding needed. In an effort to ensure he gets the treatment he desperately needs, we are doing everything we can to raise the funds.

As we are swallowed by grief, our only comfort is found in Cade who is still the happiest child we know. We
live for his smile. It reminds us every day of how lucky we are to be his parents. To save Cade and other
children sharing his condition, they need to get treatment as soon as possible due to the degenerative nature
of the disease. Their only obstacle is funding. The medicine they need already exists.

Your generosity can make a significant difference in our efforts to access this life-changing gene therapy. You
can contribute directly through Venmo or our GoFundMe page, linked below for your convenience. For those
seeking a tax-deductible option, donations can also be made through Jacks Corner Foundation, a registered
non-profit 501(c)(3) organization dedicated to supporting healthcare advancements for  kids with SPG50.
Your support, in any form, brings us closer to achieving our goal and offering hope to those in need. Thank
you for considering our cause and for your kindness in advance.

Thank all you for your love and support. We can’t do this without you!