4th Virtual Sjogren's Summit 2025

Day 1 - Amanda Turnill - Living with Sjogren's and concurrent auto-immune conditions - a life on the very dry side!


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In 2016, she was asked to become a global healthcare leader at a large international law firm. The same week, her rheumatologist advised that she had little choice but to retire due to severe ill health.What happens when a high-stress career collides with a complex, multi-system autoimmune disease? In this powerful patient story, former registered nurse and lawyer Amanda Turnill shares her 30-year journey navigating Sjogren's, seronegative diagnoses, and a host of concurrent autoimmune conditions. From debilitating pain and medication failures to finally building a supportive, multi-disciplinary team of over a dozen specialists, Amanda offers a masterclass in resilience and self-advocacy.Watch this session to learn practical tips for managing specific Sjogren's symptoms, understand the importance of doing your own research, and see how it's possible to reinvent your life and find hope, even on the very dry side.EPISODE IN A GLANCE00:00 Introduction05:14 The First Hints of Autoimmune Disease & a Cascade of Stressful Events06:36 The Power of Self-Advocacy: "You Need to Do Your Own Research"09:03 Navigating Concurrent Conditions & Musculoskeletal Issues10:50 Retiring from a High-Profile Career & Grieving a Lost Identity12:34 The Reality of Medications: A Combination That Finally Works14:37 Building a Comprehensive Healthcare Team: My 12+ Specialists18:03 Practical Tips for Sjogren's Symptoms: Neuropathy, Dry Mouth, and Dry Eyes21:31 Final Thoughts on Reinvention, Hope, and a Fulfilling LifeABOUT AMANDA TURNILLAmanda Turnill is a former registered nurse and pharmaceutical/regulatory lawyer who has suffered from Sjogren's disease and other concurrent auto-immune conditions for the past 15 years. With a high level of medical and legal literacy from her 25+ year career, she brings a unique perspective to navigating complex medical systems. Amanda is now a passionate patient advocate, a board member for two health-related organizations, and a powerful example of how to build a comprehensive, multi-disciplinary care team to manage the many challenges of Sjogren's while continuing to do valuable work.CONNECT WITH AMANDA TURNILLWebsite → https://amandaturnill.com/LinkedIn → https://www.linkedin.com/in/amandaturnill/?originalSubdomain=auABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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4th Virtual Sjogren's Summit 2025By Kara Wada, MD