On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about social media support groups, group etiquette , sharing experiences over giving directions, she will explore another PCD myth, and finally on this week’s editorial she will discuss protecting other members’ privacy.

December 6, 2021 Social Support Groups

Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care.<br /><br />“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

Society & Culture

Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care.“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care.<br><br>“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

Share December 6, 2021 Social Support Groups

Sign up to save your podcasts

December 6, 2021 Social Support Groups

December 6, 2021 Social Support Groups