Capturing Essence for Care

Dementia Advocacy from Lived Experience with Mary Beth Wighton


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Join our discussion with Mary Beth Wighton, inspiring international dementia advocate, writer and speaker as we talk about what it's like living with a diagnosis of probable Frontal Temporal Dementia and learn how she captures her essence.  

Our conversation covers:

  • what receiving the diagnosis is like and the importance of bedside manner;
  • coming to terms with a diagnosis not just for herself but for family; 
  • choosing to live with purpose and the role of being an advocate;
  • creating culture and policy change through community;
  • speaking up for our own needs and being a part of our own health care team;
  • the importance of positive energy and connection;
  • communicating our wishes with family and your most trusted supports;  
  • why words matter (Caregiver vs. Care Partner)

**Note:  This episode was recorded in the fall of 2022.

Links mentioned:

  • Mary Beth's book:  Dignity & Dementia:  Carpe Diem:  My journals of living with dementia 
  • Murray Alzheimer Research and Education Program (MAREP)
  • Canadian Dementia Strategy

Please subscribe and listen wherever you get your podcasts!

Interested in learning more?

  • Check out my YouTube channel
  • AWE Struck! Aspirations website

Looking for printable life story and dementia related resources? Check out the resources on AwestruckAspirations' Etsy Shop

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Capturing Essence for CareBy Lisa Joworski