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In this continuation of our conversation about clinical trials, host Alisyn Camerota and Martin D Hynes, III, discuss the real obstacles patients face when pursuing clinical trials.
Marty, a chemist and pancreatic cancer survivor, explains that while clinical trials require additional testing beyond standard of care, pharmaceutical companies cover these costs, including scans, blood work, and often travel expenses and lodging for patients and caregivers.
He addresses concerns about leaving established care teams and emphasizes the importance of having an advocate to coordinate communication between medical teams. Marty and Alisyn discuss the complexities of genetic and tumor testing required for trial eligibility, the challenges patients face when too ill to travel, and privacy concerns around medical data sharing.
Despite these barriers, Marty is optimistic about improvements in trial access through organizations like Let's Win Pancreatic Cancer and PanCAN, which offer trial finders and patient navigation services. He shares that his recent checkup showed normal CA19-9 levels and clear scans, and encourages patients not to give up hope as treatments continue to improve.
Thank you to our sponsor, Revolution Medicines.
Let’s Win Pancreatic Cancer Clinical Trial Finder
PanCAN Clinical Trial Finder
PanCAN Patient Services
Let’s Win Doctor Finder
By Let's Win Pancreatic Cancer5
44 ratings
In this continuation of our conversation about clinical trials, host Alisyn Camerota and Martin D Hynes, III, discuss the real obstacles patients face when pursuing clinical trials.
Marty, a chemist and pancreatic cancer survivor, explains that while clinical trials require additional testing beyond standard of care, pharmaceutical companies cover these costs, including scans, blood work, and often travel expenses and lodging for patients and caregivers.
He addresses concerns about leaving established care teams and emphasizes the importance of having an advocate to coordinate communication between medical teams. Marty and Alisyn discuss the complexities of genetic and tumor testing required for trial eligibility, the challenges patients face when too ill to travel, and privacy concerns around medical data sharing.
Despite these barriers, Marty is optimistic about improvements in trial access through organizations like Let's Win Pancreatic Cancer and PanCAN, which offer trial finders and patient navigation services. He shares that his recent checkup showed normal CA19-9 levels and clear scans, and encourages patients not to give up hope as treatments continue to improve.
Thank you to our sponsor, Revolution Medicines.
Let’s Win Pancreatic Cancer Clinical Trial Finder
PanCAN Clinical Trial Finder
PanCAN Patient Services
Let’s Win Doctor Finder