Today I’m joined by Patrick Mason for a special episode. Since we both host podcasts, we thought it would be fun to do a dual interview and share our stories together. Patrick opens up about his own journey—what led him into podcasting, his experience as a dad to a child with HLHS, and the hopes he carries for the future.

https://micahmasonfoundation.org/

https://micahmasonfoundation.org/sharingthehope/sharing-the-hope/

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Growing up with CHD, there was no manual on what we could or couldn’t do—it was often trial by fire. Our parents did the best they could with the information they had, but as we step into adulthood, it’s on us to figure out how to start—or keep up—an active lifestyle. For some, that comes naturally; for others, it’s a lifelong struggle. What we all share, though, is an understanding of how important movement is for our health and well-being. Join us today as we talk openly about our health journeys and the role physical activity plays in our lives.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Today I’m joined by Aiden, who shares his powerful CHD and transplant journey. His path toward transplant began when he was just 16, and at 18, he received his new heart. Now, nine years later, Aiden reflects on the reality that while his heart is strong, his body is facing new challenges. Join us as he opens up about his experiences, what he’s learning along the way, and how he continues moving forward.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Aaron is back! Today, he opens up about his disability journey—what led him to the decision to step away from his job and begin the Social Security process. He shares the barriers he faced along the way and highlights the key things he believes others should consider when navigating this path. After a long road, he finally receives that official stamp of approval.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Today, Bekah opens up about her journey of finding her footing as an adult with CHD. Learning to advocate for ourselves isn’t always easy—it takes time, growth, and confidence. For Bekah, certain life experiences have sparked a stronger drive to speak up for her needs. Now, she’s drawing from those moments and the lessons they’ve taught her to make positive changes in both her health and the way she communicates with her care team.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

To say Melanie’s story is unique would be an understatement. While having one child with CHD is already rare—about 1 in 100 births—Melanie is navigating life with two children living with congenital heart disease. The challenges are real, but she’s meeting them head-on with strength and grace.

For Melanie, the key has been finding balance—giving her oldest the space to live his life with guidance, while encouraging both of her children to make their own choices and discover who they are within the context of CHD. Her priority has always been to raise confident, self-aware kids who feel empowered to take ownership of their journeys.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Today, Thirza shares her powerful story of living with CHD. Despite the challenges she’s faced, it’s clear she’s thriving. I especially love how she reflects on the impact of being part of a CHD group in her younger years—how those connections turned into lasting relationships. Inspired by that experience, she’s now continuing the mission for adults. Tune in to hear her incredible journey.

Below is her Website and Facebook page for her adult group.  Go check it out!

https://aangeborenhartafwijking.nl/hartcor/

https://www.facebook.com/share/g/1BTqvUTUA1/

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Katherine was born in 1982, and from the very beginning, her parents were filled with hope for her future. She underwent her first surgery within months of birth and received the Fontan procedure at age nine. From that point through much of her adult life, her health remained stable. However, in her 30s, she began experiencing arrhythmias—an unexpected turn that significantly altered the course of her life. Join me as Katherine opens up about her journey, sharing the emotional impact and grieving process that has come with navigating these changes in her adult years.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Today, Tessa shares her journey through pregnancy, life as a military spouse, and the transition of care in managing her CHD. She reflects on her experiences with four pregnancies, navigating the challenges of frequent relocations as part of a military family. Additionally, she opens up about her transition from pediatric to adult cardiology, emphasizing the importance of understanding your CHD early to prepare for independent adulthood.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs

Ellie was born with CHD, facing numerous challenges along the way. However, the most significant complication she endured was a stroke. Looking back, she recalls the frustrating journey of seeking help for her worsening symptoms—only to be told it was all in her head and that everything was fine. Doubting herself, she trusted the doctors' reassurances and pushed through, ignoring the warning signs. Unfortunately, this dismissal ultimately led to a stroke, forever changing her life and outlook on advocating for herself and other.

If you would like to be on the show please reach out! 
Facebook:  Amy Erhart Cunningham

Facebook Page:  Diaries of a Heart Warrior
Instagram:  amyerhart_hlhs