Summary

In this episode of Dizzy Directors, Rey shares their experience living with POTS (Postural Orthostatic Tachycardia Syndrome) and how it has affected their life in college. They discuss their journey of self-discovery and the challenges they faced in getting diagnosed with various conditions. They also talk about the frustrations of navigating the medical system and the lack of understanding and support from some healthcare professionals. Rey emphasizes the importance of self-advocacy, self-care, and finding a supportive community of friends who understand their experiences.

Takeaways

• Living with POTS can be challenging and often involves navigating a complex medical system.
• Self-advocacy and self-care are crucial for managing chronic illnesses like POTS.
• Finding a supportive community of friends who understand your experiences can provide valuable support.
• The medical system can be frustrating and may involve medical gaslighting, but it's important to persist in seeking proper diagnosis and treatment.

Chapters

00:00 Introduction and Disclaimer

00:49 Ray's Experience with POTS and College

05:23 Challenges in Getting Diagnosed and Internalized Ableism

07:48 Frustrations with the Medical System

09:42 Different Experiences with POTS Diagnosis

11:35 Dealing with Medical Gaslighting

16:07 Navigating College and Disability Services

25:01 Managing Temperature Control and Accommodations

28:45 Connecting with Others with POTS

32:31 Sharing Experiences and Building Supportive Friendships

38:09 Overcoming Internalized Ableism

39:43 Balancing Treatment Options and Challenges

43:57 Advice for Those with POTS or Chronic Illness

45:30 Conclusion