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E09 Jasmine and Chris Discuss Elhers-Danlos Syndrome
In this episode of The Rapp Report, we interviewed Jasmine and Chris. They both suffer from Elhers-Danlos Syndrome.
Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues, primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body.
People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn't strong enough to hold them.
A more severe form of the disorder, called Ehlers-Danlos syndrome, vascular type, can cause the walls of your blood vessels, intestines or uterus to rupture.
Jasmine is studying for her Masters in the Genomics of Rare Diseases at the University of Advancing Technology. Her specific focus is on CRPS, Parkinson's Disease, and Ehlers-Danlos Syndrome.
https://www.uat.edu/
Her and Chris also administrate a Facebook group called Wheel Love:
https://www.facebook.com/groups/298024614229963
As well as a Youtube Channel:
https://www.youtube.com/channel/UCqys1wyoXq4v1umo-TscWdw
They support the Coalition of State Pain Advocacy:
https://painadvocate.org/
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By Branden Rapp, Chronic Pain AdvocateIn this episode of The Rapp Report, we interviewed Jasmine and Chris. They both suffer from Elhers-Danlos Syndrome.
Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues, primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body.
People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn't strong enough to hold them.
A more severe form of the disorder, called Ehlers-Danlos syndrome, vascular type, can cause the walls of your blood vessels, intestines or uterus to rupture.
Jasmine is studying for her Masters in the Genomics of Rare Diseases at the University of Advancing Technology. Her specific focus is on CRPS, Parkinson's Disease, and Ehlers-Danlos Syndrome.
https://www.uat.edu/
Her and Chris also administrate a Facebook group called Wheel Love:
https://www.facebook.com/groups/298024614229963
As well as a Youtube Channel:
https://www.youtube.com/channel/UCqys1wyoXq4v1umo-TscWdw
They support the Coalition of State Pain Advocacy:
https://painadvocate.org/