In this moving episode of The FL Community Podcast the team sit down with Charlotte Cox — founder of Lymphoma Out Loud — to explore what it really means to self-advocate as a patient.

Charlotte was just 27 when, after two years of being misdiagnosed, she was told she had stage 4 follicular lymphoma. What followed was a journey marked by courage, persistence, and purpose. From fertility preservation and chemotherapy, through relapse and recovery, Charlotte has transformed her frustration at delayed diagnosis into a powerful movement for awareness and education.

https://lymphomaoutloud.org/

BBC Radio 5's You, Me and the Big C:

https://www.bbc.co.uk/programmes/p0608649/episodes/downloads

Please send your comments, questions and feedback to:

[email protected]

Here are some other websites that might be useful:

Living with Follicular Lymphoma Facebook Group

The Follicular Lymphoma Foundation

Robert Miller's comprehensive collection of resources built over decades on how to live well with FL:

https://lymphomasurvival.com