Rare Disease Connection

Ehlers-Danlos Syndrome (EDS)


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Hear from the experts in our conversations on a rare genetic disease: Ehlers-Danlos syndrome. We cover EDS diagnosis, new treatment options, and how to connect with the EDS community.

Experts in this episode include:

*Kelly Bontempo, a Genetic Counselor and Faculty Member at the Graduate Program in Genetic Counseling at Northwestern University.

*Jan Delariman a Senior Occupational Therapist at Lutheran General Hospital.

*Patricia Shimanek, PT, a physical therapist with expertise in EDS.

More resources and information for you: raredisease.com/eds

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Rare Disease ConnectionBy Aspect Health Inc