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Emily was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) after a misdiagnosis of Classical EDS and the passing of her mother, who also had vEDS and was not properly diagnosed. Emily still finds joy in music, and continues to play for her mom. <3
If you would like to share your story with VEDS on this podcast, reach out to me here. I look forward to hearing from you!
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By Katie Wright4.8
2929 ratings
Emily was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) after a misdiagnosis of Classical EDS and the passing of her mother, who also had vEDS and was not properly diagnosed. Emily still finds joy in music, and continues to play for her mom. <3
If you would like to share your story with VEDS on this podcast, reach out to me here. I look forward to hearing from you!
Source