The 29th of February is Rare Disease Day, a date that was established in 2008 by the European Organisation for Rare Diseases. This date was chosen to raise awareness about the exceptionality of rare diseases and advocate for more research and better treatments for those affected.In Spain, it is estimated that more than 3 million people are diagnosed with rare diseases and according to the Spanish federarion of Rare Diseases, only 6% of these diseases have a treatment and almost 50% of patients are not satisfied with the health care they received. The Spanish Federation of Rare Diseases (FEDER) have been advocating for research, diagnosis and access to treatments for 25 years. To tell us more about rare diseases, the importance of raising awareness and the federation, we spoke with David Sanchez, member of the board of directors of the federation.