When I was going through the worst of COVID, I felt alone, isolated & misunderstood.
No-one I knew was experiencing anything like I was.
Then I read an article about Professor Paul Garner (Prof of infectious diseases), describing his experiences with Corona Virus & realised there were others like me.
"He had a muggy head, upset stomach, tinnitus, pins and needles, breathlessness, dizziness and arthritis in the hands. Each time Garner thought he was getting better the illness roared back. It was a sort of virus snakes and ladders. “It’s deeply frustrating. A lot of people start doubting themselves,” he says. “Their partners wonder if there is something psychologically wrong with them.”"
(https://www.theguardian.com/world/2020/may/15/weird-hell-professor-advent-calendar-covid-19-symptoms-paul-garner)
Paul Garner started the first "long hauler" support group, but it took me a while to find one myself.
Since joining the group I have realised that many people are not being listened to - they are called hypochondriacs, crazy or told they are just suffering anxiety.
These stories need to be heard. So that others don't feel so alone & so loved ones of people going through this, may understand.