Being Rare Podcast

Ep 106. Being Rare and Black: A Rare Disease Day Exclusive


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In this episode of the Being Rare Podcast, Sarita sits down with James Griffin and Genesis Jones, patient advocates and authors. We're talking about navigating life with sickle cell, healthcare bias, stigma, and more!

The books mentioned in this episode can be found on Amazon. Direct links are below.

Breaking Silence: Living with Sickle Cell Anemia by James Griffin III https://a.co/d/3znpc3s

Rebirth: A Sickle Cell Warrior's Crossover (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/3lVQL7Z

Resilient: Reflections of a Sickle Cell Journey (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/73XsFla

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Being Rare PodcastBy Sarita Edwards


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