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Episode summary:

In this episode, I sit down with Dr. Brentia Caldwell-Smith, founder of the UP Center and a licensed professional counselor who specializes in chronic illness navigation. We discuss disenfranchised grief—the kind of loss that comes with chronic illness that people don't always recognize or validate—and explore how cultural expectations around strength, religion, and perseverance can complicate the healing process. Dr. Brentia shares her personal experience living with lupus and interstitial lung disease, and we talk about the importance of building community, finding joy in the midst of uncertainty, and making your life work for you even when it looks different than you expected. This conversation is full of practical wisdom about connecting with others, prioritizing your own needs, and refusing to let illness take away your ability to have fun and live fully.

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FOR MEDICAL PROFESSIONALS:

🏢 WE’RE HOSTING A CONFERENCE! WOOO! It’ll be an IN-PERSON & VIRTUAL event in Atlanta, GA, on MARCH 6&7, 2026!⁠ ⁠REGISTER HERE!⁠

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Disclaimer: Everything we talk about here is just meant to be general education and information. It's not intended as personal mental health or medical advice. If you have any questions related to your unique circumstances, please contact a licensed therapist or medical professional in your state of residence.