Organs, Tissues & Other Issues

Ep 13: SPECIAL - The Island of Misfit Toys: Diseases Edition


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Welcome back to another episode of Organs, Tissues & Other Issues! Today’s episode is a special episode because today is... RARE DISEASE DAY! Have you ever found a case study — one that said “the first of its kind to be described” — and though ‘someone else has it too!?’  only to realize the case study was about you? This has been a part of the rare disease — or rare manifestations of a disease — experience for co-host Karyssa. 1 in 10 people is thought to be impacted by one of the ~7,000 rare diseases. In the US, a rare disease is defined as a disease that affects less than 200,000 people in the country. However, there is a difference between a disease that is truly rare, and one that is rarely diagnosed — the self-fulfilling prophecy of a disease receiving the label of “rare”. Join co-hosts Karyssa and Siv to learn more about rare diseases, the experiences of a rare patient and those around them, and ways that you can start to help to make a difference for these patients. The co-hosts use humor to laugh, to share their insight, and discuss the challenges of rare diseases. We hope you enjoy this special episode! Please feel free to reach out and share your thoughts with the co-hosts via their email ([email protected]), through Instagram (@organstissuesandotherissues), or personally — they always love to hear from you.

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Organs, Tissues & Other IssuesBy Organs Tissues

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