Patient POV

Ep. 18 - Sophie


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Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Sophie (@sophielucy.seger), a fellow dog mom, and chronic illness advocate. She has endometriosis and joint hypermobility syndrome and is currently working as a doula. We had a great conversation about endometriosis, medical gaslighting, and why it is so difficult to get diagnosed with endometriosis including health inequities in receiving care, as well as in research. 

Notes:

  • Get a second (or third) opinion, there are some good doctors out there

  • Take someone to the appointment with you for help

  • Support system and pets (like dogs!) makes a world of difference 

  • It is hard when you can’t trust your own body but start trusting yourself!

  • Good websites

    • https://endometriosissouthcoast.com/author/jodiehughes/

    • https://endobuddies.com/

    • https://www.menstrualhealthproject.org.uk/

    • Heat and tens machines help along side medications

    • Reach out for support and if you don’t have people in your area, connect to people online - a lot of comfort can be found in sharing and relating with people who understand and are going through it as well 

    • You are not alone!

    • ...more
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      Patient POVBy Jess Hay