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Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Sophie (@sophielucy.seger), a fellow dog mom, and chronic illness advocate. She has endometriosis and joint hypermobility syndrome and is currently working as a doula. We had a great conversation about endometriosis, medical gaslighting, and why it is so difficult to get diagnosed with endometriosis including health inequities in receiving care, as well as in research.
Notes:
Get a second (or third) opinion, there are some good doctors out there
Take someone to the appointment with you for help
Support system and pets (like dogs!) makes a world of difference
It is hard when you can’t trust your own body but start trusting yourself!
Good websites
https://endometriosissouthcoast.com/author/jodiehughes/
https://endobuddies.com/
https://www.menstrualhealthproject.org.uk/
Heat and tens machines help along side medications
Reach out for support and if you don’t have people in your area, connect to people online - a lot of comfort can be found in sharing and relating with people who understand and are going through it as well
You are not alone!
By Jess HayHello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Sophie (@sophielucy.seger), a fellow dog mom, and chronic illness advocate. She has endometriosis and joint hypermobility syndrome and is currently working as a doula. We had a great conversation about endometriosis, medical gaslighting, and why it is so difficult to get diagnosed with endometriosis including health inequities in receiving care, as well as in research.
Notes:
Get a second (or third) opinion, there are some good doctors out there
Take someone to the appointment with you for help
Support system and pets (like dogs!) makes a world of difference
It is hard when you can’t trust your own body but start trusting yourself!
Good websites
https://endometriosissouthcoast.com/author/jodiehughes/
https://endobuddies.com/
https://www.menstrualhealthproject.org.uk/
Heat and tens machines help along side medications
Reach out for support and if you don’t have people in your area, connect to people online - a lot of comfort can be found in sharing and relating with people who understand and are going through it as well
You are not alone!