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Serena shares her deeply moving journey of faith through pregnancy, motherhood, and loss after her son was diagnosed with Trisomy 13 (Patau Syndrome), a rare genetic condition.
• Faith and motherhood are intricately woven together in Serena's life, not separate elements to be juggled
• Finding out about her pregnancy with "Jam Jam" was initially a shock, coming just nine months after her previous child
• At the 12-week scan, doctors identified potential issues leading to the diagnosis of full Trisomy 13
• Despite being told 90% of children with this condition die shortly after birth, Serena focused on the 10% chance of survival
• Facing her own health complications from a previous pregnancy that left her in heart failure, Serena still chose to continue the pregnancy
• The remarkable moment when Jam Jam, born with no eyes (bilateral anophthalmia), miraculously opened his eyes at eight months old after Serena's prayer
• Jam Jam lived for five years, defying all medical predictions and touching countless lives with his joy
• The peaceful passing of Jam Jam surrounded by family and music, with Serena experiencing a spiritual awareness of God's presence
• Practical ways Serena honors her son's memory, including planting perennial bulbs at his grave, which she calls his "front door"
• Advice for others on this journey: cherish every moment, catalog memories, connect with supportive communities, and maintain faith in God
For anyone walking through pregnancy complications, a difficult diagnosis, or child loss, remember you're not alone. Connect with others and be honest about your struggles – it's okay not to be okay.
Support the show
Thank you for Listening
To ask us a question email us @ [email protected]
Send us a text
Serena shares her deeply moving journey of faith through pregnancy, motherhood, and loss after her son was diagnosed with Trisomy 13 (Patau Syndrome), a rare genetic condition.
• Faith and motherhood are intricately woven together in Serena's life, not separate elements to be juggled
• Finding out about her pregnancy with "Jam Jam" was initially a shock, coming just nine months after her previous child
• At the 12-week scan, doctors identified potential issues leading to the diagnosis of full Trisomy 13
• Despite being told 90% of children with this condition die shortly after birth, Serena focused on the 10% chance of survival
• Facing her own health complications from a previous pregnancy that left her in heart failure, Serena still chose to continue the pregnancy
• The remarkable moment when Jam Jam, born with no eyes (bilateral anophthalmia), miraculously opened his eyes at eight months old after Serena's prayer
• Jam Jam lived for five years, defying all medical predictions and touching countless lives with his joy
• The peaceful passing of Jam Jam surrounded by family and music, with Serena experiencing a spiritual awareness of God's presence
• Practical ways Serena honors her son's memory, including planting perennial bulbs at his grave, which she calls his "front door"
• Advice for others on this journey: cherish every moment, catalog memories, connect with supportive communities, and maintain faith in God
For anyone walking through pregnancy complications, a difficult diagnosis, or child loss, remember you're not alone. Connect with others and be honest about your struggles – it's okay not to be okay.
Support the show
Thank you for Listening
To ask us a question email us @ [email protected]