Patient POV

Ep. 25 - Olivia

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Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Olivia (insta: oliviardennis) who has a Christian based chronic illness page (insta: Yourpainhasapurpose). She shares their journey with POTS, CMT, GP, hEDS, chronic migraine, fibromyalgia, IBS, GERD, and mental health conditions. She also makes care packages for chronically ill teens called spoonie boxes!

Notes:

  • Slow down and give yourself compassion

  • Salt/electrolyte recommendations: Vitassium salt pills, Liquid IV, LMNT, pedialyte 

  • Ice pack https://www.releafpack.com

  • Coping skills

    • Therapy

    • Deep breathing

    • Grounding

    • Affirmations 

    • Mindfulness

    • Journaling

    • Self care activities

      • Spending time with pets

      • Watching a show or movie

      • Lighting a candle

      • Reading a book

      • Listening to music

      • Support groups

        • Even if (insta: @weareeven) bible study support group for women with disabilities https://linktr.ee/weareevenif

        • Promise: support group for people with CMT https://www.cmtausa.org/get-involved/cmta-compass/

        • Take it one day at a time, he present and mindful

        • Don’t give up - there is support and love out there for you

        • Continue giving yourself grace and compassion

        • Don’t over do yourself

        • Trust your gut BUT if you have stomach issues, maybe don’t 

          • ...more
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          Patient POVBy Jess Hay