In this One Minute Monday Repod Sarita talks about saying no. With the holidays upon us it's important to know "your" limits.
Listen to 60 seconds of Being Rare, on the road!

In this One Minute Monday Repod Sarita talks about saying no. With the holidays upon us it's important to know "your" limits. Listen to 60 seconds of Being Rare, on the road!

Ep 28. Saying No - Repod

Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. 

Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Ep 28. Saying No - Repod

Ep 28. Saying No - Repod

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