Patient POV

Ep. 29 - Steph (@spoonfulsofchronic)


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Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

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Today we hear from Stephanie (insta: spoonfulsofchronic) who shares her story with Ankylosing spondylitis, endometriosis, adenomyosis, fibromyalgia, hidradenitis Supprativa. She works as a specialist oncology and haematology physiotherapist which provide a great foundation for our conversation to pair her personal and professional experience. 

Notes:

  • Things that help with the pain and fatigue is heat, sitting down, animal support, support from people to help you drive when you have more pain 

  • Period pain that affects your daily life is not normal!!

  • Advocate for yourself and don’t give up! You know your body better than anyone else, so keep pushing!

  • Allowing at least one person in because a support system is important! 

  • Be kind to yourself! Whatever you need to do to get through a flare, do it (ex: cancel your plans to go out - and your true friends should understand and respect that)

  • ...more
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    Patient POVBy Jess Hay