Patient POV

Ep. 32 - Lindsay


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Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

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Today we chatted with Lindsay (insta: spoonfuloflindsay) who shares her story with small fiber neuropathy, POTS, migraine, ME/CFS, and more!

Notes:

  • Small Fiber Neuropathy: Lindsay describes what small fiber neuropathy is and how it affects her daily life as a teacher through numbness, tingling and pain.

  • Daily Challenges: The most challenging impacts on Lindsay's daily life from her conditions like brain fog and fatigue.

  • Coping Strategies: Ways that Lindsay advocates for herself and finds accommodations like reduced hours and mobility assistance.

  • Managing Chronic Illness: Discussing strategies for navigating the healthcare system and advocating for oneself when seeking diagnosis.

  • Give yourself permission to rest

  • Self-Care Strategies: Deep breathing exercises and meditation apps used to manage fatigue and support restorative sleep and recommends the Yoga Nidra meditation app.

  • Don’t be afraid of firing unsupportive doctors and finding one with a good bedside manner (you can look at their online profile and reviews).

  • Asking doctors that are dismissive to document the refusal of the request you made (ex: tests or referrals) in medical notes. This will be proof if you get results back in the future and sometimes they change their mind once documented

  • ...more
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    Patient POVBy Jess Hay