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We open our hearts about caregiver fatigue, broken trust, and the sharp edges of life with severe autism while weighing practical options like group homes and community respite. Along the way we face language boundaries, public behaviors, new obsessions, and small moments of joy that keep us going.

• caregiver stress after years without respite
• loss of trust with family after neglect
• emotional needs of severe autism, not stereotypes
• dependence vs dignity and pacing independence
• marriage strain and the ethics of group homes
• community-based respite and pooled solutions
• summer of hell at day camp and stripping
• language boundaries and slurs corrected
• wardrobe tactics to reduce impulsive behaviors
• emerging obsessions and safety concerns
• gaps in medical care and self-regulation tools
• family triggers and a moment of self-advocacy
• humor, creativity, and small wins that sustain us

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