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EP4 - Lee Reavey, Co-Founder and CEO of the NCBRS Worldwide Foundation
Lee Reavey is the Co-Founder and CEO of the NCBRS Worldwide Foundation. He co-founded NCBRS Parent Support Group in May 2010. Lee’s son received a diagnosis Nicolaides-Baraitser Syndrome as only the seventh known case of NCBRS in the world. At that time, there was very little, if any, information available online.
NCBRS is related to a gene variant of SMARCA2 but more research is needed.
⬇️⬇️
NCBRS website - https://bit.ly/3S5S8uY
NCBR patient registry - https://bit.ly/3D7FJ5g
Facebook - https://www.facebook.com/ncbrsworldwidefoundation
Twitter - https://twitter.com/ncbrsfoundation
Instagram - https://www.instagram.com/ncbrs/
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Don't miss an episode of Signalise! Be sure to ✔️FOLLOW or ✔️SUBSCRIBE via your podcast app of choice. You can also follow #Signalise news on @Dazzle4Rare on Facebook , Instagram , and Twitter. You can find host Kimberly on LinkedIn at @kattague.
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By Kimberly Thomas-TagueLee Reavey is the Co-Founder and CEO of the NCBRS Worldwide Foundation. He co-founded NCBRS Parent Support Group in May 2010. Lee’s son received a diagnosis Nicolaides-Baraitser Syndrome as only the seventh known case of NCBRS in the world. At that time, there was very little, if any, information available online.
NCBRS is related to a gene variant of SMARCA2 but more research is needed.
⬇️⬇️
NCBRS website - https://bit.ly/3S5S8uY
NCBR patient registry - https://bit.ly/3D7FJ5g
Facebook - https://www.facebook.com/ncbrsworldwidefoundation
Twitter - https://twitter.com/ncbrsfoundation
Instagram - https://www.instagram.com/ncbrs/
---
Don't miss an episode of Signalise! Be sure to ✔️FOLLOW or ✔️SUBSCRIBE via your podcast app of choice. You can also follow #Signalise news on @Dazzle4Rare on Facebook , Instagram , and Twitter. You can find host Kimberly on LinkedIn at @kattague.