Signalise: a Dazzle4Rare Podcast

EP9 - How rare communities will use emergent ”Metaverse” concept for social media and patient engagement with guest Sean Gordon


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Sean Gordon is the Founder and Chief Volunteer Officer of RareFundingTeam. Sean was diagnosed with an adult onset condition, Adult Polygulcosan Body Disease.

After this life-changing rare disease diagnosis, Sean founded Rare Funding Team with the goal of bringing together communications professionals and rare disease organizations on a pro-bono basis. 

Sean has been developing a concept around a "Metaverse" or "Web3" and how it could benefit Rare Disease patient communities.

 

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RRM Article

https://rarerevolutionmagazine.com/merging-the-metaverse-and-the-rare-disease-community-join-the-conversation/

Contact Sean: https://www.rarefundingteam.com/contact

Sean Gordon's social media

Linkedin - https://www.linkedin.com/in/sean-gordon-a510609/

Facebook - https://www.facebook.com/Rarefundingteam

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Signalise: a Dazzle4Rare PodcastBy Kimberly Thomas-Tague