Ever wondered what it's like to live with an ultra-rare disease? In this episode, Sarah, host of It's a Rare Story, opens up about her journey with Alpha-Mannosidosis. Hear the highs and lows of her journey, and how she's turned challenges into opportunities.Sarah takes you through the diagnosis journey, school experiences, and where she is today. Alpha-Mannosidosis is a degenerative genetic lysosomal disease which falls under the Glycoprotein Storage Disease category. Sarah went through a bone marrow transplant in hopes to stop Alpha-Mannosidosis from progressing.Today, she is finishing her Bachelors degree in Marketing, has a blog, Achieve the Impossible Today where she shares her current experiences, and is the Communications Officer for ISMRD (International Society for Mannosidosis and Related Diseases).Your story matters! If you're living with a rare disease or disability and want to share your experience to inspire others, we invite you to be a guest on It's a Rare Story. Please send us an email at [email protected] with a brief overview of your story. We're eager to hear from you!Visit the links below to learn more:Blog: www.AchieveTheImpossibleToday.comISMRD: www.ISMRD.orgAll information is from personal experience and for medical advice please reach out to a medical doctor. #raredisease #alphamannosidosis #disabilityawareness #podcast #inspiration #bmt #lysosomaldisease #advocacy #showyourstripes