Episode 11: Heather’s Life with Ezra (age 3)

If you are in the early years of parenthood, you can probably relate to Heather. Mom of two littles, one with CDKL5, plus she and her husband are working full-time - life is busy! Ezra lives life in a big way and distinguishing what is CDKL5-related behavior vs typical toddler behavior is complicated for her parents. In this episode you’ll explore Ezra’s challenges with CDKL5 (spoiler, right now it’s not seizures!), her sibling relationship, and the impact special needs parenting has on career, marriage, lifestyle, and more.

“Your child sets the tone. Never give up on your child!” - Heather

SHOW NOTES

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MENTIONED IN THE EPISODE:

• CDKL5 Sibling Book - message Toasting Tanner

• Seizure Action Plan

• Cortical Visual Impairment (CVI)

• Montessori Bed

• ARK chewies