Ryan Hall explores the vital role of advocacy in this episode of Soul-R Powered, featuring Dr. George Ackerman, who shares his journey inspired by his mother's battle with Parkinson's disease. Dr. Ackerman discusses his forthcoming documentary and book, "A Son's Journey," and the challenges of caregiving. The conversation underscores the significance of public awareness, community support, and personal storytelling in Parkinson's advocacy. Dr. Ackerman highlights obstacles in research, the patient experience, and the National Plan to End Parkinson's Disease. The episode concludes with insights into genetic factors, future projects, and ways to support ongoing advocacy efforts.

Disease. With my family, we started TogetherForSharon® for the purpose of keeping my mother,

Sharon’s, memory alive and to share the message of Parkinson’s Awareness and hope for a cure.

Today https://www.togetherforsharon.com/ reaches thousands of individuals across the country

for PD Awareness.

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(0:00) Introduction and overview with Ryan Hall

(0:23) Ryan Hall on the importance of advocacy

(1:02) Guest introduction: Dr. George Ackerman and his advocacy work

(2:27) Dr. Ackerman's mother's battle with Parkinson's and her influence on his work

(4:25) Announcement of Dr. Ackerman's upcoming documentary and book, "A Son's Journey"

(6:01) The challenges and impact of caring for someone with Parkinson's

(17:19) The role of public awareness in Parkinson's advocacy

(20:50) The importance of community and sharing personal stories in Parkinson's advocacy

(22:22) Overcoming obstacles in Parkinson's research and raising media attention

(27:15) Understanding Parkinson's disease and the patient experience

(31:21) National Plan to End Parkinson's Disease: Research advances and funding frustrations

(35:09) Genetic factors in Parkinson's and increasing awareness

(37:15) Dr. Ackerman's future projects and how to support Parkinson's advocacy

(39:18) Connecting with Dr. George Ackerman and his initiatives