In this episode of These Kids Can’t Wait, we hear Oliver’s story through the perspective of his mom as she shares their family’s journey navigating life with rare disease. From the challenges and uncertainty to the moments of strength, resilience, and hope, this conversation offers an honest look into the realities rare disease families face every day. Every story shared helps raise awareness, build connection, and move us one step closer to a treatment.

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Learn more about The Lost Enzyme Project:

🔗 https://tlep.org (https://tlep.org/)

Support the mission and follow along:

🔗 https://thelostenzymeproject.org/podcast/