The Support & Kindness Podcast

Episode 14: Understanding Chronic Pain - Beyond Hurt


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The Support & Kindness Podcast – Episode 14

Title: Understanding Chronic Pain: Beyond Hurt

Recording date: December 6, 2025
Hosts: Greg (host), Rich, Jay, Derek, Sam

Important Disclaimer

None of the hosts are medical professionals. This episode offers education, validation, and peer support. It is not medical advice.

Always consult your healthcare provider before starting, stopping, or changing any treatment or medication.

Episode Overview

Chronic pain is much more than “something hurts.” It can change:

  • Your body
  • Your brain
  • Your relationships
  • Your work and finances
  • The way you see yourself and the world
  • In this episode, Greg and co‑hosts Rich, Jay, Derek, and Sam sit down for an honest, vulnerable conversation about:

    • What it’s really like to live with ongoing pain
    • What helps them keep going
    • What Is Chronic Pain?

      Greg opens with a simple grounding definition:

      • Chronic pain = pain that lasts longer than normal healing time
      • Usually 3–6 months or more
      • It’s different from acute pain, which is your body’s early warning system that something is wrong.

        When pain persists, the nervous system can become overly sensitive, so:

        • Ordinary sensations or minor activities can feel disproportionately painful.
        • Chronic pain doesn’t stay in one box. It can:

          Impact on the Body
          • Weaken the immune system

            • Easier to get sick
            • Harder to recover
            • Affect heart and circulation

              • Higher blood pressure
              • Fatigue
              • Changes in heart rate
              • Disrupt digestion

                • Nausea
                • Appetite changes
                • Stomach issues
                • Change weight

                  • Weight loss or weight gain
                  • Often tied to changes in activity, appetite, and medication side effects
                  • Affect breathing

                    • Shallow, tight breathing
                    • Especially when pain and anxiety show up together
                    • Turn everyday tasks into major challenges

                      • Walking, standing, cleaning, cooking, showering
                      • On the worst days, even brushing your teeth or taking a shower can feel impossible
                      • Force changes in hobbies and movement

                        • Sports, crafts, music, and exercise may need to be:
                          • Reduced
                          • Adapted
                          • Paused or stopped
                          • How Chronic Pain Affects the Mind

                            Chronic pain doesn’t just live in the body. It also changes how the mind works.

                            Brain Fog & Concentration
                            • Losing words mid‑sentence
                            • Forgetting things
                            • Struggling to focus on simple tasks
                            • Decision Fatigue
                              • Even small choices feel huge:
                                • What to do next
                                • Whether to go out
                                • Whether to cook or order in
                                • It can feel like climbing a mountain when you’re already exhausted.

                                  Motivation Shifts
                                  • You may still want things
                                  • But feel too drained or overwhelmed to start
                                  • This often feeds:

                                    • Guilt
                                    • Shame
                                    • Self‑criticism
                                    • Especially in a world that celebrates “pushing through” pain instead of respecting limits.

                                      Emotional & Social Impact

                                      Greg and the co‑hosts talk about how chronic pain affects:

                                      • Emotions
                                      • Identity
                                      • Relationships
                                      • Common emotional and social impacts:

                                        Anxiety & Stress
                                        • Fear of flare‑ups
                                        • Worries about the future, work, and money
                                        • Feeling like life is shrinking
                                        • Self‑Image & Self‑Esteem
                                          • Feeling “broken,” “lazy,” or “not enough”
                                          • Especially when people don’t understand or don’t believe you
                                          • Coping with Substances
                                            • Some people turn to alcohol or drugs trying to get relief
                                            • It’s completely understandable—and can still create serious problems later
                                            • Isolation
                                              • Canceling plans at the last minute
                                              • Missing family events
                                              • Leaving early to lie down
                                              • Withdrawing because you don’t want to disappoint people
                                              • Family Roles

                                                When a partner, parent, or caregiver lives with pain, roles at home often shift.

                                                • This can be stressful for everyone involved
                                                • Intimacy

                                                  Physical closeness and sex can become:

                                                  • Painful
                                                  • Complicated
                                                  • Hard to talk about
                                                  • Even in loving relationships.

                                                    Work & Money
                                                    • Missed days
                                                    • Reduced hours
                                                    • Losing a job entirely
                                                    • Ongoing medical bills and treatment costs
                                                    • The Invisible Side of Chronic Pain

                                                      One of the hardest parts, as Greg puts it, is that chronic pain is often invisible.

                                                      People around you might say:

                                                      • “You don’t look sick.”
                                                      • “You were fine yesterday.”
                                                      • “It’s probably stress.”
                                                      • Scans and blood tests may come back “normal” even when the pain is intense.

                                                        Pain is complex: it involves both body and brain, and current tests don’t capture everything.

                                                        Greg emphasizes:

                                                        “If you live with chronic pain, even if tests show nothing, your pain is still real. Your experience is valid and it matters. Not seeing anything on a scan doesn’t mean you’re imagining it or making it up.”

                                                        Co‑Host Stories & Key Insights

                                                        Greg invites each co‑host to share three things:

                                                        1. How their pain began
                                                        2. One emotional or social challenge
                                                        3. One practical strategy that helps them get through the day
                                                        4. Rich – Migraines, TBI, Missing Milestones

                                                          How it began:

                                                          • Multiple car accidents as a teen
                                                          • Layered on top of earlier sports concussions
                                                          • Led to traumatic brain injuries, headaches, and migraines that still affect him decades later
                                                          • Social/emotional impact:

                                                            • Avoided concerts, sporting events, noisy environments
                                                            • Light and sound could turn a headache into a full migraine
                                                            • Missed holidays, left gatherings early, skipped “fun times” to lie down with a washcloth on his head
                                                            • Rich shares:

                                                              “I missed a lot of memories and a lot of quality time with people, so I could sit back with a washcloth on my forehead… socially it takes a toll.”

                                                              Later in the episode, echoing something Sam said about people not wanting to hear about pain anymore, Rich adds:

                                                              “You say ‘my back hurts, my legs hurt, my joints hurt’ so many times that loved ones tune out… It’s isolating. It’s lonely.”

                                                              What helps Rich:

                                                              • Staying hopeful and looking toward new treatments and medications
                                                              • Reminding himself that advances in migraine and head injury care are happening all the time
                                                              • Jay – Stomach Illness, Misdiagnosis, Stigma

                                                                How it began:

                                                                • Lives with cyclical vomiting syndrome and cannabinoid hyperemesis
                                                                • A condition where cannabis use can trigger severe vomiting episodes and hospitalizations
                                                                • At 18, he went from an “iron stomach” (drinking beers, eating wings with friends) to his first episode, which he thought was the flu.

                                                                  • The vomiting wouldn’t stop → repeated ER visits → misdiagnoses
                                                                  • Eventually had a healthy gallbladder removed before doctors realized what was really happening
                                                                  • Social/emotional impact:

                                                                    • Frequent hospitalizations every few months
                                                                    • Dramatic weight loss and constant nausea
                                                                    • Because cannabinoid hyperemesis is triggered by cannabis use, he faced:

                                                                      • Stigma
                                                                      • Judgment
                                                                      • Even a doctor telling him not to come back to the ER for his condition.

                                                                        This affected relationships, including his engagement:

                                                                        • Ongoing cannabis use plus repeated hospitalizations contributed to a breakup
                                                                        • Jay recalls:

                                                                          “They even brought a security guard to escort me out… You wear out your welcome with medical professionals.”

                                                                          What helps Jay:

                                                                          • Stopping cannabis use (several months at the time of the episode)
                                                                            • Significantly reduced preventable episodes
                                                                            • Hydrotherapy (warm baths) when his stomach flares
                                                                            • Breathing exercises and meditation, especially during the worst times
                                                                            • Peer support groups, including the podcast community and online support groups
                                                                            • Jay shares:

                                                                              “Since I’ve had the groups with you fellas and the podcasts, I’ve really found the emotional pain has gotten a lot better. I feel included, loved… Support groups are there. They help a lot.”

                                                                              Derek – TBI, Gait Changes, Finding Perspective

                                                                              How it began:

                                                                              • Serious fall down a flight of stairs while drunk
                                                                              • Resulted in a traumatic brain injury
                                                                              • Months blurred by coma and heavy sedation
                                                                              • Physical impact:

                                                                                • Nerve damage near the hip
                                                                                • Affects gait and balance
                                                                                • Causes muscle compensation and persistent dull lower‑back pain
                                                                                • Sometimes avoids physical activities and games when he doesn’t feel “up to snuff”
                                                                                • Emotional impact:

                                                                                  After the injury:

                                                                                  • Strong emotional volatility
                                                                                  • Everything felt either extremely positive or extremely negative
                                                                                  • Over time, he learned to:

                                                                                    • “Simmer down”
                                                                                    • Step back
                                                                                    • Notice emotional swings instead of being swept away by them
                                                                                    • What helps Derek:

                                                                                      • An “amalgam of stretches,” combining:

                                                                                        • Vinyasa yoga
                                                                                        • Old cross‑country running routines
                                                                                        • Walking, breathing, and listening to what his body says, including:

                                                                                          • “Rest” when needed
                                                                                          • Trusting his gut and second‑guessing himself less
                                                                                          • Derek offers a powerful reframe of pain:

                                                                                            “Sometimes, even in the worst moods and the worst pain I’ve ever felt… I get solace from the ability to experience pain, considering how close I came to dying… At least you’re able to feel this. At least you’re not dead from the brain injury.”

                                                                                            Sam – Broken Back, Joint Damage, Addiction, Recovery

                                                                                            How it began:

                                                                                            • Broke his back in his twenties when a roof caved in at work
                                                                                            • Developed avascular necrosis (long‑bone joints not getting enough blood and starting to collapse)
                                                                                            • Physical & medical journey:

                                                                                              • Multiple joint replacements, including hips
                                                                                              • Surgeries and long‑term pain led to:
                                                                                                • Heavy opioid use
                                                                                                • Later, heroin addiction
                                                                                                • Now:

                                                                                                  • In recovery for 12 years
                                                                                                  • Learning to live with chronic pain without traditional pain medication
                                                                                                  • Supported by Suboxone for addiction recovery and some pain relief
                                                                                                  • Social/emotional impact:

                                                                                                    • At first, chronic pain consumed every conversation
                                                                                                    • People got tired of hearing how miserable he felt
                                                                                                    • He withdrew
                                                                                                    • He describes his body as feeling like it’s in “mutiny”:

                                                                                                      • Unpredictable
                                                                                                      • Unreliable
                                                                                                      • He spent time on the streets in active addiction before entering recovery.

                                                                                                        What helps Sam:

                                                                                                        • Breathing and meditation
                                                                                                        • Jokes that he’s “late” to understanding how his brain works
                                                                                                        • Learning how the brain, chronic pain, and addiction intersect
                                                                                                        • Accepting that:

                                                                                                          • No amount of pain medication will erase everything
                                                                                                          • The focus is on management, not total elimination of pain
                                                                                                          • Sam sums it up:

                                                                                                            “You don’t really ‘get over it.’ You learn to live with it and learn different coping strategies.”

                                                                                                            Greg – Back Injury, Weight, Depression, Service

                                                                                                            How it began:

                                                                                                            • Used to be the person at work who would lift anything heavy:
                                                                                                            • “If you can’t move it, go get Greg.”

                                                                                                            • Years of poor lifting technique
                                                                                                            • Larger body size
                                                                                                            • Pushing past pain with a “no pain, no gain” mindset
                                                                                                            • Eventually led to back injuries that never fully went away
                                                                                                            • Impact on life:

                                                                                                              • Cancelled plans → growing isolation
                                                                                                              • Worsening depression
                                                                                                              • Weight gain connected to:
                                                                                                                • Medication changes
                                                                                                                • Reduced activity
                                                                                                                • Feeling stuck in a vicious cycle:
                                                                                                                  • Pain → inactivity → low mood → isolation → more pain
                                                                                                                  • What helps Greg:

                                                                                                                    • Distraction and purpose, like:

                                                                                                                      • A daily “Creative Work Hour”—a virtual coworking group that became a “second family”
                                                                                                                      • Gratitude practices focused on:

                                                                                                                        • What’s still possible
                                                                                                                        • What’s going right, even on hard days
                                                                                                                        • Service work in recovery communities (such as Alcoholics Anonymous)

                                                                                                                        • Getting out of his own head by helping others

                                                                                                                          Greg shares:

                                                                                                                          “These groups have helped tremendously… To anyone listening who lives with chronic pain, you’re not alone and your experience matters. It’s okay to take one step at a time.”

                                                                                                                          Key Takeaways from the Conversation
                                                                                                                          • Your pain is real even if tests are “normal.”

                                                                                                                          • Chronic pain affects:

                                                                                                                            • Body
                                                                                                                            • Mind
                                                                                                                            • Emotions
                                                                                                                            • Relationships
                                                                                                                            • Finances
                                                                                                                            • It is completely reasonable to feel overwhelmed.

                                                                                                                              People with chronic pain often feel:

                                                                                                                              • Invalidated
                                                                                                                              • Tuned out by loved ones
                                                                                                                              • Dismissed by professionals
                                                                                                                              • This creates deep loneliness.

                                                                                                                                There is no single cure for most chronic pain conditions.

                                                                                                                                Most people use a mix of tools, such as:

                                                                                                                                • Medical care (as needed)
                                                                                                                                • Pacing activity and planning
                                                                                                                                • Gentle movement and/or physical therapy
                                                                                                                                • Mental health strategies
                                                                                                                                • Sleep habits
                                                                                                                                • Community and peer support
                                                                                                                                • Self‑advocacy to help be heard:
                                                                                                                                  • Tracking symptoms
                                                                                                                                  • Preparing questions
                                                                                                                                  • Bringing notes to appointments
                                                                                                                                  • Peer support matters.

                                                                                                                                    The hosts repeatedly mention community and support groups as key to reducing emotional pain and isolation.

                                                                                                                                    Practical Strategies You Can Try (If You Have the Capacity)

                                                                                                                                    Greg wraps up with gentle, practical ideas—not prescriptions, just options to explore if they feel doable.

                                                                                                                                    1. Start a One‑Page Pain & Activity Log

                                                                                                                                    Each day, jot down:

                                                                                                                                    • Date
                                                                                                                                    • Pain level (0–10)
                                                                                                                                    • Main activities
                                                                                                                                    • How you slept
                                                                                                                                    • One small change you might try next time
                                                                                                                                    • This can help you spot patterns and triggers over time.

                                                                                                                                      2. Pick a Five‑Minute Grounding Routine for Flare Days

                                                                                                                                      Examples:

                                                                                                                                      • Slow, deep breathing
                                                                                                                                      • A gentle body scan
                                                                                                                                      • Noticing sensations without judgment (temperature, pressure, texture)
                                                                                                                                      • The goal is not to erase pain, but to give your nervous system a brief moment of calm.

                                                                                                                                        3. Set One Tiny Movement Goal for the Week

                                                                                                                                        Keep it small and realistic. For example:

                                                                                                                                        • 3 × 10‑minute gentle walks per week
                                                                                                                                        • A daily 2‑minute mobility or stretching routine
                                                                                                                                        • Standing and stretching for one commercial break or between tasks
                                                                                                                                        • Tiny, consistent changes often work better than big, unsustainable pushes.

                                                                                                                                          4. Choose One Supportive Person & Create a Simple Signal

                                                                                                                                          Pick someone you trust and agree on:

                                                                                                                                          • A signal (a text emoji, code word, or short phrase)
                                                                                                                                          • A short script you use when you need to cancel plans
                                                                                                                                          • That way, you don’t have to explain everything every time.

                                                                                                                                            Validation & Encouragement
                                                                                                                                            • If you live with chronic pain, you did not cause this.
                                                                                                                                            • Needing rest or help does not make you weak.
                                                                                                                                            • Small, consistent habits plus supportive people can make a real difference over time.
                                                                                                                                            • National & International Resources for People with Pain

                                                                                                                                              (All websites confirmed to have an active web presence as of December 7, 2025.)

                                                                                                                                              United States & International
                                                                                                                                              • U.S. Pain Foundation – Education, advocacy, peer support programs (including Pain Connection).

                                                                                                                                                https://uspainfoundation.org

                                                                                                                                              • Chronic Pain Anonymous (CPA) – 12‑step style fellowship for people living with chronic pain and illness.

                                                                                                                                                https://chronicpainanonymous.org

                                                                                                                                              • American Chronic Pain Association (ACPA) – Peer support, self‑management tools, resources.

                                                                                                                                                https://www.acpanow.com

                                                                                                                                              • National Pain Advocacy Center (NPAC) – Policy and civil‑rights advocacy for people living with pain.

                                                                                                                                                https://nationalpain.org

                                                                                                                                              • Chronic Pain Research Alliance (CPRA) – Research‑focused coalition on complex chronic pain conditions.

                                                                                                                                                https://chronicpainresearch.org

                                                                                                                                              • International Association for the Study of Pain (IASP) – Global pain research, education, and resources.

                                                                                                                                                https://www.iasp-pain.org

                                                                                                                                              • Agency for Healthcare Research and Quality (AHRQ) – Evidence‑based patient guides and healthcare resources.

                                                                                                                                                https://www.ahrq.gov

                                                                                                                                              • American Society for Pain Management Nursing (ASPMN) – Nursing education and best practices.

                                                                                                                                                https://www.aspmn.org

                                                                                                                                                Canada & Regional
                                                                                                                                                • Canadian Pain Society – Professional society with advocacy and educational resources for patients and clinicians.

                                                                                                                                                  https://www.canadianpainsociety.ca

                                                                                                                                                • Pain BC – Resources, programs, and a Pain Support Line for people in British Columbia (many tools helpful elsewhere).

                                                                                                                                                  https://painbc.ca

                                                                                                                                                  Condition‑Specific Resources
                                                                                                                                                  • Arthritis Foundation – Support, education, and advocacy for people living with arthritis.

                                                                                                                                                    https://www.arthritis.org

                                                                                                                                                  • American Migraine Foundation – Education, research, and support for people living with migraine.

                                                                                                                                                    https://americanmigrainefoundation.org

                                                                                                                                                  • National Fibromyalgia & Chronic Pain Association (NFMCPA) – Support and advocacy for people with fibromyalgia and chronic pain.

                                                                                                                                                    https://www.fmcpaware.org

                                                                                                                                                  • Foundation for Peripheral Neuropathy – Education, research, and patient support for peripheral neuropathy.

                                                                                                                                                    https://www.foundationforpn.org

                                                                                                                                                    Apps & Digital Tools

                                                                                                                                                    Always check with your healthcare provider before making changes to your care or relying heavily on an app.

                                                                                                                                                    Symptom & Pain Tracking
                                                                                                                                                    • Bearable – Symptom, mood, and habit tracker to spot patterns and triggers.

                                                                                                                                                      https://bearable.app

                                                                                                                                                    • mySymptoms Food Diary & Symptom Tracker – Helps identify links between food and digestive symptoms.

                                                                                                                                                      https://www.mysymptoms.net

                                                                                                                                                    • Health Storylines – Track symptoms, medications, and daily health data; create summaries to share.

                                                                                                                                                      https://www.healthstorylines.com

                                                                                                                                                    • PainScale (Pain.com) – Pain diary and education platform developed in collaboration with Boston Scientific.

                                                                                                                                                      General info:
                                                                                                                                                      https://www.pain.com/en/personal-support-resources/tools-you-can-use/pain-management-apps/painscale-app.html

                                                                                                                                                      Pain Education & Coping
                                                                                                                                                      • Curable – Biopsychosocial pain‑education and coping app using mind–body approaches.

                                                                                                                                                        https://www.curablehealth.com

                                                                                                                                                      • Pathways Pain Relief – Education, physiotherapy, mindfulness, and CBT‑based tools for chronic pain.

                                                                                                                                                        https://www.pathways.health

                                                                                                                                                      • Pain Coach (VA) – Free app from the U.S. Department of Veterans Affairs / National Center for PTSD to help manage chronic pain.

                                                                                                                                                        https://mobile.va.gov/app/pain-coach

                                                                                                                                                        Mindfulness & Sleep

                                                                                                                                                        Many mindfulness apps include meditations and series specifically for pain, stress, and sleep. Examples:

                                                                                                                                                        • Headspace
                                                                                                                                                        • Calm
                                                                                                                                                        • Insight Timer
                                                                                                                                                        • Oak
                                                                                                                                                        • Search your device’s app store for:

                                                                                                                                                          • “Pain”
                                                                                                                                                          • “Chronic pain”
                                                                                                                                                          • “Sleep”
                                                                                                                                                          • “Stress relief”
                                                                                                                                                          • Cannabis Tracking
                                                                                                                                                            • Releaf App – For people using medical cannabis who want to track products, doses, and effects.
                                                                                                                                                            • https://releafapp.com
                                                                                                                                                              Directories & Global Initiatives
                                                                                                                                                              • Organizations Dedicated to People with Pain – A directory curated by the American Academy of Pain Medicine.

                                                                                                                                                                https://painmed.org/organizations-dedicated-to-people-with-pain/

                                                                                                                                                              • IASP Global Year – Annual global campaign focusing on a specific aspect of pain care.

                                                                                                                                                                2025 campaign focuses on pain management, research, and education in low‑ and middle‑income settings.
                                                                                                                                                                https://www.iasp-pain.org/advocacy/global-year/

                                                                                                                                                                Free Online Support Groups (Hosted by KindnessRX.org)

                                                                                                                                                                If you’d like a safe, supportive space to talk with others who truly understand what it’s like to live with:

                                                                                                                                                                • Chronic pain
                                                                                                                                                                • Brain injury
                                                                                                                                                                • Mental health challenges
                                                                                                                                                                • Greg and the team host several free online peer support groups each week.

                                                                                                                                                                  📅 Kindness RX Support Groups Calendar (Luma)

                                                                                                                                                                  View the full schedule and sign up directly here:

                                                                                                                                                                  👉 https://luma.com/calendar/cal-oyT0VPlVTKCPxBw

                                                                                                                                                                  From that page, you can:

                                                                                                                                                                  • See upcoming groups
                                                                                                                                                                    • Including Chronic Pain, Brain Injury, and Mental Health support groups
                                                                                                                                                                    • Check times in your local time zone
                                                                                                                                                                    • Register for individual sessions
                                                                                                                                                                    • You can also learn about the broader KindnessRX.org community resources here:

                                                                                                                                                                      • Main site: https://kindnessrx.org
                                                                                                                                                                      • Support groups overview: https://kindnessrx.org/support-groups/
                                                                                                                                                                      • Call to Action

                                                                                                                                                                        If this episode helped you or someone you care about:

                                                                                                                                                                        • Subscribe to The Support & Kindness Podcast in your favorite podcast app.
                                                                                                                                                                        • Leave a rating and review – it genuinely helps others find the show.
                                                                                                                                                                        • Share the episode with a friend, family member, or clinician who might benefit.
                                                                                                                                                                        • Reach out:
                                                                                                                                                                          • Send feedback, resources, or your story to: [email protected]
                                                                                                                                                                          • Let the team know what resonated and what topics you’d like to hear next.
                                                                                                                                                                          • Closing Thought

                                                                                                                                                                            Greg:

                                                                                                                                                                            “Thank you for listening to The Support & Kindness Podcast. Join us next time for another inspiring conversation. Until then, take care.”

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                                                                                                                                                                            The Support & Kindness PodcastBy Greg Shaw