Have you ever asked yourself, “What do you mean I need a consent form? We are just presenting on a project we did with our community aphasia group.” Dr. Myrna Schwartz speaks with Dr. Janet Patterson about the important role of ethics and institutional review in clinical research activities in which community aphasia groups may wish to participate. It’s an important and often confusing topic that all people who are interested in either research or program evaluation should understand.

In this episode, you will:

• Hear Dr. Schwartz describe the human face of research and the importance of institutional review board activities and informed consent to clinical research happening in community aphasia groups;
• Learn how to differentiate inward focused research examining Quality Assurance and Quality Improvement of a community aphasia group from outward focused research designed to answer a clinical question;
• Learn strategies and techniques for your community aphasia group to develop an institutional review board or to partner with a university or hospital for clinical research activities.

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