It’s a beautiful thing to have a day filled with peaceful joy, but oftentimes when your child has a diagnosis of CDKL5 Deficiency Disorder, a holiday can feel anything but peaceful or joyful. Unfortunately, sometimes what should be a special day can feel emotionally and/or physically draining.

So, what can we do to survive holidays with CDKL5?

In this latest podcast episode, we dive into how we manage these special days in our families. Spoiler - it’s giving ourselves and our children a lot of grace and leaning into what works for our unique life instead of holding on to traditions that don’t serve us.

SHOW NOTES

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MENTIONED IN THE EPISODE:

• Purple Pumpkin Project

• CVI - Cortical Visual Impairment

• Adaptive Bike Fundraiser

• Meow Wolf

• Little Room

• Activity Arch