On episode 2 of As PER Usual, a podcast for practical patient engagement, it's all about how patient partners are compensated - if at all! (And no, paying for parking to attend the meeting doesn't count!)

Our guests today are the dynamic duo of Grace Fox and Maureen Smith, who teamed up on Grace's recent Master's thesis to explore the current state of patient partner compensation guidance in the literature. In this episode, they discuss how researchers can champion patient partner compensation in their own research practices, and more broadly, within their current academic and clinical institutions.

Grace Fox is currently a Strategies for Patient-Oriented Research Assistant at the Ottawa Hospital Research Institute where she helps researchers and patient partners navigate patient engagement in health research. She recently graduated from the Master's of Science in Epidemiology program at the University of Ottawa where she focused her thesis on understanding the current landscape of patient partner compensation. Her thesis included 1) a systematic review to assess reporting of patient partner compensation and current practices, 2) a survey of researchers and institutions to identify challenges and barriers to compensation and 3) a scoping review to capture published guidance and policy around patient partner compensation. 

Maureen Smith has a long history of collaboration with the healthcare system subsequent to a rare disease diagnosis in childhood. She had the privilege to be a member of Grace’s thesis advisory committee as she explored compensation from an institutional and researcher perspective.

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Visit our Substack for a transcript and links to resources shared by our guests.

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit asperusual.substack.com