Get A Room Podcast

Episode 21 - Surviving Hypoplastic Left Heart Syndrome, The Story Of Our Daughter


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On today’s episode we go over Hypoplastic Left Heart Syndrome, a condition that our 10 year old daughter was diagnosed with before birth. We discuss how we have managed to get through the tough situation of having a child with severe medical needs, and continued to have a happy, healthy marriage.

Specific topic discussed in this episode:

  • Scott’s work trip. (0:30)
  • Our daughter Ivy’s newest diagnosis. (1:45)
  • Ivy’s medical issues amping up in the last year. (4:45)
  • Why having a child with a medical condition is stressful on a marriage. (5:20)
  • Ivy’s story of how she was diagnosed with Hypoplastic Left Heart Syndrome (HLHS). (6:30)
  • How we dealt with the news of her heart condition. (8:15)
  • Ivy’s birth and immediately afterwards including her first open heart surgery. (9:30)
  • Emergency heart surgery. (11:45)
  • Slow progress of recovery, and other diagnoses. (13:10)
  • Recovery at home after 2 heart surgeries and one intestinal surgery. (15:15)
  • More heart surgeries and continuing to have children. (17:15)
  • Ivy’s amazingness and why she is the best. (17:55)
  • Fear of needles with Ivy and Scott. (20:30)
  • Never having to raise our voice with this perfect child. (22:30)
  • "Fun" facts of HLHS. How rare it is, why it occurs, treatment, continued risks, etc. (23:40)
  • Rochelle being featured on another podcast (Heart 2 Heart with Anna, Episode - Congenital heart awareness at Podcast Movement 2019) to give a short synopsis of Ivy’s story. (28:00)
  • More on how we got through and continue to get through everything. (30:30)
...more
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Get A Room PodcastBy Rochelle And Scott

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