In Episode 3, you’ll hear from CDKL5 mama, Rachel, who is raising her amazing nine-year-old daughter, Mimi, with her family in California. There are so many quotables in this episode! Rachel is an insightful speaker and her stories about life with Mimi are captivating.

Listen in as Rachel reflects on the unexpected path they’ve walked with CDKL5, the challenges they face balancing Mimi’s physical abilities with her significant functional disabilities, the safety measures taken to protect her, and the unique difficulties this brings to their home and sibling dynamics.

Thanks for joining us, Rachel!

SHOW NOTES

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MENTIONED IN THE EPISODE:

• California Regional Center

• CDKL5 Parent Support Group on Facebook

• Huckleberry Tandem Hiking