CDKL5 in Color

Episode 36: Let’s Talk About Bathing Our Kids


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Episode 36: Let’s Talk About Bathing Our Kids

Either love it or hate it (or somewhere in between), bathing our kids is part of life. For many families living with CDKL5 Deficiency Disorder, bath time can be tricky due to positioning challenges, lifting and transferring, less-than-ideal spaces, or sensory issues. In this latest episode, we talk about how we manage, and we share equipment, tips, and tricks we use to keep our kids fresh and clean. We talk haircuts too!

Shout out to the caregivers who chimed in on our Facebook post: Jenn, Lauren, Renee, Danielle, Kiera, Kim, Sarina, Taylor, Melissa, Christina, Heather, & Christine.


SHOW NOTES

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Thank you to our 2026 Airwave Ally Sponsor - UCB Pharma!


LINKS:

Scrubzz Rinse Free Soap & Shampoo Bath Sponges

Wet Ones Body Wipes

ShowerBuddy BathLyft

Trakz - Bath Straddle System for Tub

Rifton WAVE Chair and Transfer System for Tub

Rifton MEDIUM HTS Hygiene and Toileting System

Firefly Splashy Chair

Glo Pals Water Activated Light Up Bath Toys

Therapy Wraps

Article: Abdominal Massage for Constipation

eBook: Charlie Foundation - Keto Friendly Personal Care Products

...more
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CDKL5 in ColorBy Marissa Bishop