Episode 38: Aditi’s Life with Ria (age 6)

Parenthood changes us, no question, but the adjustments we make when parenting a child with medical complexities and disabilities takes the experience to another level. In this latest episode, you’ll hear Aditi’s experiences raising her feisty eldest daughter, Ria, who lives with CDKL5 Deficiency Disorder. We talk about the intensities of caregiving and the impact this life has on siblings, including worries about the future. We also explore the benefits of finding a school program that works, the need for more support at home for a high-energy child, and the lack of spaces where families can be comfortable and happy as a whole unit.

Thanks for joining us, Aditi!

SHOW NOTES

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LINKS:

ABA Therapy - Applied Behavior Analysis

Article: Always Coping, Rarely Seen: Explaining Glass Child Syndrome

Episode 3: Rachel’s Life with Mimi

Article: Taking Care of YOU: Self-Care for Family Caregivers