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Episode 39: Let’s Just Chat!
Sometimes it’s good just to chat. In this latest episode, we talk about what’s been on our minds of late. We talk about the ongoing challenges we face with home nursing and respite, how the upcoming federal budget for 2027 may impact our families and what we can do to advocate, and we talk MEGA COLON - it’s a variety! Have a listen!
SHOW NOTES
Check out our website and sign up for our quarterly newsletter at www.CDKL5inColor.com
Follow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!
Email us to be on the show! [email protected]
Thank you to our 2026 Airwave Ally Sponsor - UCB Pharma!
LINKS:
Colorado Consumer-Directed Attendant Support Services (CDASS)
Council of Parent Attorneys and Advocates
IDEA - Individuals with Disabilities Education Act
The Arc: Education Policy and Advocacy
Find Your Representatives in Congress
Waivers: HCBS Home & Community-Based Services 1915(c)
Kids’ Waivers - state by state list
Cleveland Clinic: Peristalsis
Cleveland Clinic: Bisacodyl
DEE-P Webinar: Navigating GI Interventions
Cleveland Clinic: Intussusception
By Marissa BishopEpisode 39: Let’s Just Chat!
Sometimes it’s good just to chat. In this latest episode, we talk about what’s been on our minds of late. We talk about the ongoing challenges we face with home nursing and respite, how the upcoming federal budget for 2027 may impact our families and what we can do to advocate, and we talk MEGA COLON - it’s a variety! Have a listen!
SHOW NOTES
Check out our website and sign up for our quarterly newsletter at www.CDKL5inColor.com
Follow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!
Email us to be on the show! [email protected]
Thank you to our 2026 Airwave Ally Sponsor - UCB Pharma!
LINKS:
Colorado Consumer-Directed Attendant Support Services (CDASS)
Council of Parent Attorneys and Advocates
IDEA - Individuals with Disabilities Education Act
The Arc: Education Policy and Advocacy
Find Your Representatives in Congress
Waivers: HCBS Home & Community-Based Services 1915(c)
Kids’ Waivers - state by state list
Cleveland Clinic: Peristalsis
Cleveland Clinic: Bisacodyl
DEE-P Webinar: Navigating GI Interventions
Cleveland Clinic: Intussusception