Before our kids were diagnosed with CDKL5 Deficiency Disorder, they were diagnosed with epilepsy. In this latest podcast episode, we share our initial experiences receiving an epilepsy diagnosis for our infants. We also share our thoughts on building a collaborative provider relationship that works.

SHOW NOTES

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MENTIONED IN THE EPISODE:

• Early Intervention (EI)

• Epilepsy Monitoring Unit (EMU)

• EEG

• ADLs = Activities of Daily Living

RESOURCES:

• Medical Advocacy Resource Guide