Having Neal at home, my role and life had changed.  

I was responsible for raising the kids, advocating and caring for Neal and negotiating with systems that just didn't seem to understand where we were coming from.

I was tired. I was grumpy. I was resentful.  

It all seemed so unfair, yet I felt guilty about complaining.  Neal was the one who had suffered so much.  What did I have to complain about?  Even the thought of complaining about what I'd lost, filled me with guilt and shame.

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