Caregiver Conversations

Episode 45 – Centering Black Caregivers: Dementia Awareness, Advocacy, and Emotional Resilience


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Episode Notes

Guest: Dr. Florence Johnson, Clinical Scholar and Research Fellow, University of Michigan School of Nursing, Institute for Healthcare Policy and Innovation

Hosts: Kristie King & Antonia Harbin Lamb

Topics Covered:

  • Dr. Johnson’s personal caregiving journey and inspiration for her research
  • Early signs of dementia and what families should watch for
  • Cultural stigma and caregiver isolation in Black communities
  • How dementia impacts caregivers emotionally, physically, and socially
  • The importance of routine, validation, and music therapy in dementia care
  • Burnout, guilt, and the physical health risks for caregivers
  • Challenges Black caregivers face in seeking and accepting help
  • The need for caregiver inclusion in healthcare systems and discharge planning
  • Creating safe spaces for caregivers to share and access resources
  • The role of clinical trials and Black brain health research
  • Encouragement for Black families to participate in caregiving research
  • Dr. Johnson’s call to center caregivers’ voices in interventions

Resources Mentioned:
Dr. Florence Johnson 

Email: [email protected]
LinkedIn: Florence Johnson

Caregiver Conversations Podcast: [email protected]

Senior Regional Collaborative:
Website: www.semisrc.org
Email: [email protected]
Phone: 888-341-8593

Neighborhood Legal Services – Elder Law and Advocacy Center:
Website: www.nlsmichigan.org
Phone: 313-937-8291

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Caregiver ConversationsBy Antonia Harbin-Lamb, Kristie King


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