The podcast series Take on Duchenne

Episode #5: “Gaming is not a screen, it is a gate to the world”


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In this episode, Robert Steen from Norway is sharing some of the learnings he made with his son Mats, who lived with Duchenne muscular dystrophy. Mats mostly sat in his basement apartment behind rolled down curtains and played computer games until late at night. To the great sorrow of his parents, he isolated himself and did not want to go out to meet people. After Mats passed away at the age of 25, the parents found out that he had had a very rich social life in the gaming world. This was a wake-up call for them.
In this podcast, we are invited to an area of life that many parents are not aware of. The virtual gaming life. At the funeral of Mats’, the family got to meet some of his closest friends for the first time. Friends that had not only been very meaningful in Mats’ life, but he had also been an important person in their lives, in a world where disabilities and age do not exist.
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The podcast series Take on DuchenneBy The podcast series Take on Duchenne

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