In this latest podcast episode, we delve into the challenges of managing constipation in CDKL5 Deficiency Disorder. We share our personal experiences, discuss why constipation is a common issue for individuals with this rare disease, and suggest practical tips and strategies that you can consider with your child’s doctor.

Adequate Hydration!

Getting our kids moving or standing, tummy massage.

Dietary changes, over the counter remedies, and prescription meds.

Shout out to the caregivers who chimed in to share their management tips on our Facebook post! Heather, Stephanie, Kelly, Kevin, Jessie, April, Jol, Olivia, Kara, Justice, Renee, Melissa, Emily, Joellen, Courtney, Michelle, Karolina, Danielle, Hope, Kristin, Rebecca, Stephanie, Kori, Ruth, Jacqueline, & Megan  

SHOW NOTES

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MENTIONED IN THE EPISODE:

The Poopinator

CDKL5 Introductory Care Guide

Recommendations for the Management of CDD

RESOURCES:

Get Motility Problems in Children