Seizure Action Plan Awareness Week is Feb 10-17, 2025 and in this latest episode we talk about seizure action planning basics and share our experiences developing these specialized plans for our loved ones with CDKL5 Deficiency Disorder. We also share some personal tales about others’ reactions to our kids' seizures and reflect on the realities we manage as our “normal” living with a severe refractory epilepsy. 

SHOW NOTES

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MENTIONED IN THE EPISODE:

• www.SeizureActionsPlans.org

• Epilepsy Foundation School Nurse Training

• rescue medication = a drug that can stop a seizure quickly in an emergency

• hypoxic = having too little oxygen

• PO / NPO = “by mouth” / “nothing by mouth”

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